Posts from the ‘Uncategorized’ Category

We don’t want your sympathy, just your understanding

Pretty much sums it up here…..

Ping2 on the RUN =D

RP patients are mostly not blind yet. We look “normal”, no white cane, our vision is just less.

  • When we tell you we have RP, we don’t want your sympathy, just your understanding.
  • We have dark blindness. When we said we can’t go if it is at night, no, is not because we don’t like you. We like you so much that we know your house and my house are really far, so I don’t want you to go through the hassle to bring me home late at night.
  • Please, do not leave the cabinet door open or anything on the floor. Our vision is tunnel vision. We are really sorry to the doggies or cats we accidentally step on. We love animals! I knocked on this sign in public lots of time. Yes, we developed ability to laugh at ourselves, but please don’t judge us as clumsy.
  • When we…

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It’s not the globe that’s blown it’s the rods & cones.

Something interesting that I noticed recently now that it’s Christmas and there’s lights and things up.

This wont be news to those with RP and some others, it’s not really news to me but just hightlighted what’s actually going on.

While I’ve been sitting on the couch opposite these lights in our window I found that when I looked directly at one particular light (circled red) it would disappear along with afew others. When I looked just to the side magically it would appear again.  See these photos below for a very rough simulation.

i don’t see the whole image as shown but have left it as is because to crop it down would make it hard to illustrate the point.

This happens when reading also, letters come and go but when just looking around I don’t really notice it much. Also explains why I can be looking for something right in front of me for ages but never find it until I walk away.

That’s Not A Cola!

Well I reckon this could happen to anyone. My wife laughs as she takes a photo ” …you don’t think it was your eyes!” she says still laughing taking  photo, rushing to post on Facebook.

.Image

I’d grabbed a mineral water cola from the fridge, filled a glass with heaps of ice, poured the cola in, not really taking much notice. But something was odd, it was more foamy and the bubbles just weren’t going down. As I took a swig from the bottle it hit me, that’s not cola it’s beer!

Could this happen to anyone?

So what is Running in a reduced field: Retinitis Pigmentosa and this blog all about?

Retinitis Pigmentosa is commonly referred to as RP, much easier to say. What is RP? Retinitis Pigmentosa (RP) is an inherited, degenerative condition that affects the retina – the light-sensitive part of the eye. The retina consists of millions of light-sensitive photoreceptor cells, which transmit light to the brain via the optic nerve. RP causes some photoreceptor cells to fade gradually and die, losing the ability to transmit visual messages to the brain. RP usually begins to affect people in their teenage years. Most people with RP experience gradual peripheral vision loss (or “tunnel vision”). They also have difficulties seeing at night or in areas with poor illumination. Central vision is usually unaffected, so the person may still be able to read. However, this can also deteriorate and eventually lead to total blindness. Sourced from Guide Dogs NSW/ACT. Click on this link for more detail

RP is with me all the time, I have lots of visual noise, similar to a TV that is not tuned into a station, it is an overlay to everything I see. In darkness it is most obvious to me and less so in daylight. With 20 degrees of peripheral vision I constantly scan, memorising my surrounds to make a complete picture. My central vision is reasonable although there are a some patchy spots. I have cataracts in both eyes. The functional implications of RP on me is detailed on my web page.

Essentially this blog is about one aspect of my life and running, and the influence of RP on this. I have a web page almost completed that has more of the permanent information about this, some more detail on RP and me, some things I’ve done and going to do, a video of an RP simulation of a trail run I do often. Importantly the main aim of this blog and web page is, by sharing an aspect of my life this may then inspire others to try something unexpected, uniquely challenging to themselves and share with the world.

Checkout my RP simulation video on either link, some feedback would be great.
Vimeo – Onetree Hill RP simulated trail run.
YouTube –Onetree Hill RP simulated trail run.
Web page will be up soon. (Now up at) http://toddkeating.wix.com/toddkeatingrp
Photos and updates on my events are in progress. Next will likely be about being a Bitumen is Boring Ambassador in the Salomon Trail Series Silvan event.

Thanks for reading.
Todd

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Ping2 on the RUN =D

I set my goals high! Yes, I fell hard all the time but time and again have shown me that I landed stronger, to climb again! When you know you are going blind, you wake up everyday not to meet others' expectation, but to work hard for what you truly enjoy and believe in. This is my journey

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